There is an army out there! One you may not even realize exists but without it our healthcare system would crumble. It is made up of caring spouses, life-partners, children, grandchildren, relatives, friends and neighbours. These incredible, loving individuals provide care to a family member or friend with a long-term health condition, a physical or mental disability or challenges related to aging. They are 8 million strong and account for $33 billion Canadian in unpaid care for
aging parents alone.
I am part of that caring army! This is my story - a family story. As a child of about three or four, I would go with my parents to visit my paternal grandmother at her care home. My grandmother had five boys. Three, like her, went on to have Alzheimer’s or some form of dementia including my father. My father died of Alzheimer’s in 1995. I was 24 years old.
In 2000 my mother, June Fuller Moulton (now also deceased), published We Rage, We Weep: A Rural Caregiver’s Experience Coping with Alzheimer’s Disease documenting her journey as a caregiver in a remote environment. It was her hope that by sharing her experience others would feel less alone seeing something of their own story in hers especially those who lived a more rural lifestyle.
Inspired by my mother’s work, I started We Rage We Weep Alzheimer Foundation in 2006 – a charity registered in Canada which concluded its mission at the end of 2020 and voluntarily dissolved. The Foundation's goal was to shine a light on the need for activity-based, life-enriching programs for people with dementia, that supported their caregivers and families. Over its fifteen years the Foundation inspired many NGOs, non-profits, researchers and community groups to provide innovative services to enhance independence, support aging in place, fight loneliness and isolation and improve day-to-day quality of life for those living with dementia along with their carers and families.
During my time with the charity, I worked as a professional care partner with many families and people with dementia to assist them in living well with cognitive impairment. I returned to my role as a family caregiver when my father-in-law came to live with my husband and me for what would be the final two years of his life. My experience as both a personal and professional carer lends a unique perspective through a reimagined, We Rage We Weep and its Dementia Consulting services championing carers.
Grandmother, Mother & Granddaughter
Emotional Wellbeing for Care Partners and Older Adults
Personal and/or Professional Caregiver Support
Help with Difficult Conversations and Sensitive Subject Matter
End of Life Care and Planning
Personal and/or Professional Care Provider Education
Addressing Stigma in Home and Community
Helping Create Dementia-Friendly Communities
Implementation of Best Practices in Caring
Non-drug Symptom Management Strategies
Policy, Program and Service Creation and Evolution
Technology Research and Development
Consulting services are provided remotely both nationally and internationally to researchers, policy makers and technology developers creating ways to improve the wellbeing of older adults, people with dementia, caregivers and families. Personal carers - follow our social media for tools, techniques and support.